Beloved son, Lincoln Ray Usher, passed peacefully in the arms of his parents at home in Boxborough, MA, on June 30, 2024, at the tender age of two. Lincoln was born on April 4, 2022, and brought immense joy and light into the lives of his parents and those around him during his short life.
Despite the many challenges Lincoln faced throughout his courageous battle with Zellweger Spectrum Disorder, he met each day with remarkable strength and resilience, inspiring all who knew him. His laugh was pure and heartwarming, a sound that could melt your heart. He was truly sunshine in human form – his infectious smile and beautiful blue eyes could brighten the darkest of days. Lincoln had a vibrant personality; he was sweet, silly, resilient, and strong-willed. He engaged with his world and communicated with those around him in his own special ways, often belting out one of his many sounds in anticipation of you echoing it back.
He loved sensory stimulation – his vibrating and light-up toys, listening to loud music, and bumpy walks in his stroller. He adored his Mama and Dada more than anything and had his own ways of showing it – pulling his Dada’s beard and running his fingers through his Mama’s hair, fluttering his eyelashes for butterfly kisses, reaching his arms up to touch your face when he felt you over him, and sticking out his tongue for “Linky kisses.” He cherished playing games with his Dada and wrapping himself around his Mama in a warm embrace.
He was happiest when home with his parents and felt safest in their arms. His joyful, gentle spirit touched the hearts of all who met him, and he will forever be remembered for his unwavering courage and the profound love he shared.
Lincoln is survived by his loving parents, Christopher and Jamie Usher, who cherished every moment with him. He is also deeply missed by his adoring grandparents, Michael and Laura Reynolds of Bedford, John and Paula Usher, and a close-knit family of aunts, uncles, and cousins. He touched the lives of many caregivers, medical professionals, and therapists, affectionately known as “Team Lincoln,” who helped his parents give him the best possible quality of life.
Lincoln’s time with us was far too short, but we will always treasure our memories of him, and his legacy of love and bravery will live on in our hearts forever.
A Celebration of Life will be held for Lincoln in the coming months; more details will follow. In lieu of flowers, the family kindly requests donations be made in Lincoln’s memory to The Global Foundation for Peroxisomal Disorders (thegfpd.org), which does amazing work to improve the lives of warriors like Lincoln and families affected by this terrible disease.
Loading ...
